Childhood brain tumours are unlike other cancers. 

Childhood brain tumours are unlike adult brain tumours and unlike any other childhood cancer.  Childhood brain tumours develop and respond differently in children compared to adults.  They are complex diseases which according to NICE, are responsible for 1 in 5 childhood cancer deaths in the UK.  About 498 children will develop brain tumours each year and childhood brain tumours are one of the six Less Survivable Cancers (LSC) today. 

The signs  & symptoms of childhood brain tumours are often non-specific and still easily missed or diagnosed late. 

Sadly, 90% of our confirm that their child was misdiagnosed or diagnosed late. 

Nothing prepares a child or their family for the emotional, physical, spiritual/existential wellbeing challenges they will encounter after they are diagnosed with a brain tumour.  The shock of the diagnosis, often leaves the family feeling devastated, with a lingering sense of grief or despair that begins from day 1 and increases through the key stages of care until the end. 

Not all brain tumours are terminal but sadly, many children with brain tumours will loose their mobility, sight, hearing, speech and language in just a matter of weeks.  Symptomatically, children with brain tumours are known to deteriorate faster and within a shorter period of time.

It's difficult to imagine the wellbeing impact on the child and their family.



Help us reach more children, young people diagnosed with brain tumours and their families. 

We are a childhood cancer support charity established out of lived experience and in memory of Daniella Logun.

We believe that raising awareness of the holistic wellbeing impact of a brain tumour diagnosis on a child and their family, and offering holistic wellbeing support from the point of diagnosis can significantly improve the quality and outcome of care that the child receives whilst on their brain tumour/cancer care pathway. 



Through a partnership with local authorities, NHS Foundation Trusts, academic institutions and Voluntary, Community and Social Enterprise organisations we seek to establish an integrated cross-functional multi-sector network around the child and their family.

This is our strategic objective in our bid to identify the holistic wellbeing priorities that are important to the child and their family.  We strive to work with the system to co-design and co-develop solution that improve existing services, are inclusive and accessible to our children and their families. 

Through our lived experience, we remain passionate about reducing the holistic wellbeing inequalities that affect the access to, experience and outcomes of care of Children and Young People with brain tumours, other cancers and their families.

What We Do

We raise awareness of the holistic wellbeing challenges faced by children and Young People diagnosed with brain tumours, other cancers and their families and offer emotional, practical and spiritual support to our children and their families from the point of diagnosis onwards.

Click to sign The Brain Tumour Charity's Open Letter To The Health Minister | The Brain Tumour Charity.