March is

Brain Tumour Awareness Month

 Awareness is Power. Action is Hope.

Did you know that brain tumours are the leading cause of cancer-related death in children under 14 in the UK? 

While overall childhood cancer survival is rising, brain tumours still account for one-third of all childhood cancer deaths.

This March, for Brain Tumour Awareness Month #BTAM, the Daniella Logun Foundation is turning these statistics into a call for community support through two incredible community events!

Clinical Education: Bridging the Gap in Primary Care

In March 2026, the Daniella Logun Foundation was invited by the Hampshire and Isle of Wight ICB to deliver a specialist clinical education workshop for GPs, clinicians and Advanced Practitioners in Winchester.

The workshop, titled "Bridging the Gap: Voluntary Sector Integration into Primary Care," focused on raising awareness of the signs and symptoms of brain tumours in children through parent carer lived experience, introducing the HeadSmartUK GP Training programme and underscoring the wellbeing impact on the family and need for a holistic approach to the delivery of care and support to children with brain tumours from the moment of diagnosis. During the sessions, we shared vital insights on:

• Earlier Recognition: Discussing the non-specific symptoms that often lead to emergency diagnoses.
• A GP's Role in the Brain Tumour Care Pathway: Highlighting the gaps in GP involvement and negotiating barriers to better primary care services.
• Holistic Integration: Demonstrating how DLF supports the long-term intellectual and motor function challenges that follow treatment.
• Clinical Partnership: Showing how the voluntary sector provides the essential "wraparound" care that reduces the trauma load on primary care services.

By educating clinical teams, we ensure that the medical community and the voluntary sector work as one—ensuring that when life changes for a child, a robust support system is already in place. Please contact us if you are interested in our awareness programmes.

Raising awareness of the signs and symptoms of brain tumours to increase early detection and early diagnosis in children and young people . 

Emergency Diagnosis: 45% of childhood brain tumours are diagnosed in emergency settings like A&E. This is double the rate of other cancers.

Malignant Cases: Medulloblastoma is the most common malignant tumour in children, often requiring intense and life-changing treatment.

Long-term Impact: Survival is just the beginning; over a third of young survivors face long-term challenges with processing information and concentration.

Family Isolation: 90% of parents and carers report feeling lonely or isolated following a diagnosis.

Brain tumours behave differently in children compared to adults. 

How Brain Tumours Affect a Developing Child:  Brain tumours behave differently in children than they do in adults. This is because a child’s brain is still actively growing and developing. Because of this, the treatments required can lead to more significant side effects.

Long-Term Challenges: Many children undergoing treatment experience long-term changes in how they think, learn, and move. These shifts in intellectual and motor skills can happen suddenly or appear gradually over time. As a result, many children require specialized, ongoing care to help them manage school life and everyday tasks.

Supporting Holistic Wellbeing: Learning and development are essential to a child’s overall wellbeing. It can be a deep shock for both the child and their parents when these changes occur. What might start as a mild symptom can sometimes develop into more severe learning challenges or physical disabilities.

We are committed to supporting families through these changes, ensuring that every child has the best possible chance to thrive despite the hurdles they face.

Understanding Brain Tumours in Children:  Brain tumours are uniquely complex. In the UK, they are responsible for 1 in 5 childhood cancer deaths. Every year, approximately 500 children are diagnosed with a brain tumour, making it one of the six "Less Survivable Cancers" today.

The Challenge of Diagnosis The warning signs are often vague, which means they are easily missed or mistaken for other common illnesses. Sadly, 90% of our families confirm that their child’s condition was initially misdiagnosed or caught far too late.

The Emotional Journey Nothing truly prepares a family for the physical and emotional exhaustion that follows a diagnosis. The shock is immediate, leaving parents and children feeling devastated. This sense of grief and despair often begins on Day 1 and grows heavier as the family moves through the difficult stages of care.

The Rapid Impact on Health: While not all brain tumours are terminal, they are incredibly aggressive. In just a few weeks, a child can lose their ability to walk, see, hear, or speak. Children with brain tumours often decline much faster than with other illnesses, and the impact on their overall wellbeing—and that of their family—is heart-breaking.

Support our work today to ensure no family has to face this journey alone. Your support helps us reach more children and provide support when they need it most.

Raising Awareness of the Signs and Symptoms of Brain Tumours in Schools

Bridging the Gap: Supporting Education and Learning: We believe that every child deserves to feel supported at school. To make this happen, we partner directly with schools to raise awareness about how a brain tumour can affect a child’s learning, behaviour, and physical abilities.

Early Recognition and Action We work closely with families to help them recognize these changes as soon as they appear. By identifying shifts in a child’s progress early on, we can help ensure they access the right support and interventions at the right time.

Building Stronger Relationships We empower parents and carers with the information they need to advocate for their child. By facilitating better communication with schools, we create realistic opportunities for parents to discuss any concerns and ensure everyone knows exactly how to respond when changes occur.

Navigating the System The path through Special Educational Needs (SEN) or learning disability systems can be overwhelming. We are here to act as a guide, helping children and their carers navigate these complex pathways so that the child's holistic wellbeing remains the priority.
Can you help us support more children, young people with brain tumours and their families?

We are a childhood cancer support charity established out of lived experience and in memory of Daniella Logun.

We believe that raising awareness of the holistic wellbeing impact of a brain tumour diagnosis on a child and their family, and offering holistic wellbeing support from the point of diagnosis can significantly improve the quality and outcome of care that the child receives whilst on their brain tumour/cancer care pathway. 

Through a partnership with local authorities, NHS Foundation Trusts, academic institutions and Voluntary, Community and Social Enterprise organisations we seek to establish an integrated cross-functional multi-sector network around the child and their family.

This is our strategic objective in our bid to identify the holistic wellbeing priorities that are important to the child and their family.  We strive to work with the system to co-design and co-develop solution that improve existing services, are inclusive and accessible to our children and their families. 

Through our lived experience, we remain passionate about reducing the holistic wellbeing inequalities that affect the access to, experience and outcomes of care of Children and Young People with brain tumours, other cancers and their families.

What We Do

We raise awareness of the holistic wellbeing challenges faced by children and Young People diagnosed with brain tumours, other cancers and their families and offer emotional, practical and spiritual support to our children and their families from the point of diagnosis onwards.

Click to sign The Brain Tumour Charity's Open Letter To The Health Minister | The Brain Tumour Charity.