Elliott was diagnosed with a brain tumour in 2020 — a Dnet in the thalamus. His diagnosis was incidental whilst the doctors were looking for complications of birth hypoxia.

In addition to all of this, Elliott is also diagnosed with ASD, ADHD, dyspraxia, hypermobility and a history of absence seizures. He carries a lot for a young boy.

Over the lockdown, it felt like his school had abandoned him and given up trying. He had no school education because they didn’t know what to do with him. He didn’t have any mental health referral. It just feels like we’ve been dropped from a height.

The DLF have been beside us through all of it — helping us understand, helping us advocate, and reminding us we’re not alone in this.

“Over the lockdown, it felt like his school had abandoned him and given up trying. It just feels like we’ve been dropped from a height.”

Every child with a brain tumour deserves a school and a system that doesn’t give up on them. We’re grateful for everyone helping us fight for that.famil